Rare Patient Voice, LLC, connects patients and family caregivers of rare and non-rare diseases with opportunities to share their opinions with companies and researchers by participating in various research studies. These include surveys and phone interviews, online bulletin boards, focus groups, clinical trials, and more.
Listen to Empower Her Wellness
Your Host – Shelly Drymon
My mission is to empower and inspire women to embrace their life transitions as opportunities for wellness, growth, and self-discovery and live their lives with clarity, purpose, and joy. Committed to honesty, integrity, and authenticity, I lead by example, showing that it’s never too late to live a life you love.
My Guest – Wes Michael
In 2013, Wes launched Rare Patient Voice, which is based on a novel approach to building a market research panel that enables patients and caregivers to share their voices with researchers and companies developing products to improve patients’ lives.
He structured the company on the core values of being a good resource for patients, a good partner to clients, a good employer to staff, and a good citizen in our community.
Since then, Wes has seen the company grow, expanding from the US to Canada, the United Kingdom, Spain, Italy, France, and Germany. He has completed thousands of projects and provided customized services to hundreds of clients. He hopes that RPV’s work can help the lives of patients and caregivers who are able to participate in our studies and those who come after.
- Hobbies: Walking his dogs, piano, history, exercise
- Pets: Ace (mix of Beagle and Brittany) and Stanley the Chocolate Lab
- Likes: Hearing from patients who have enjoyed taking part in a study
- Dislikes: When no one qualifies for a study
- Fun Facts: Wes spent a year in Edinburgh, Scotland, and ran cross country with the Hare & Hounds
You can also check out the Rare Patient Voice YouTube channel to hear the stories of individuals who are a part of Rare Patient Voice.
